To enhance the care and quality of life of those individuals with sickle cell anemia through collaboration, education, information, and support.
The Donna T. Darrien Memorial Foundation for Sickle Cell, Inc., is incorporated in the State of New Jersey and has received tax exempt status as a 501©3 organization from the Internal Revenue Service. In 1999, in memory of Donna T. Darrien, a twenty-three year old who died as consequence of sickle cell disease on July 17, 1997, several family members and friends organized to educate the general public about this devastating disease and promote finding a cure.
While much information has been provided about sickle cell disease, those living with it and their families who deal with it on a daily basis know that a lack of education still exists. Too often the disease does not dominate the public attention. The Donna T. Darrien Memorial Foundation For Sickle Cell, Inc.was established to reach those living with sickle cell and their families through educational outreach programs; to increase knowledge about the complications of sickle cell disease; to educate the general public about sickle cell; and to encourage and support research in sickle cell disease.